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Away for the holidays
This week has been full of ups and downs. There are so many wonderful positive things happening with Kai’s Village keeping me busy. It’s amazing to see Kai’s spirit living on in the work we are doing...
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travel log: Canada
{ Chateau Frontenac – Quebec City } Chateau After an overnight pit stop in VT (due to weather) we made it to Quebec City. Our Hotel is absolutely beautiful, a giant old Chateau right in the heart of...
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2012
2012 It’s hard to look back and fully comprehend how different life is from a year ago. Last year Kai was here. Kai played. He smiled and snuggled. We were settling in to this crazy world of...
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I am a visitor here
Last week Kai’s Village, Andrea and I, went to Umass to talk with the child life specialists about how we can get connected and help the families there. The Child Life director was very happy to meet...
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Fear of commitment
I have done a lot of reflecting back lately on my life with Kai. The things we did, the choices I made. All along the way letting go of little pieces, bit-by-bit, of what I though life would be like....
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Surgery
A few months back I started having some stomach issues. Sometimes nausea sometimes a tightening in my chest that on a bad day traveled to my back. One night at the hospital with Kai I felt so awful I...
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Back to School
Recovery from surgery has been going well. I am still sore but managed to get myself to school and to our monthly Kai’s Village meet up on Thursday. It was a long day, but I did it! School was good. I...
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4 months.
I have been working on several posts for the past few weeks. Many of them start off, ‘ I can’t believe it has been almost 2 weeks…1 month…almost 2 months since my last post….’ As I sit down tonight...
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“No winter lasts forever; no spring skips its turn. “
This last month has been really hard on me. I had the longest stretch of the hardest days that I have experienced since Kai died. I’m not exactly sure why, but I have been told that many parents find...
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Awareness Matters
May is Brain Tumor Awareness month. Since the success of the breast cancer campaigns, it seems as though every day, week, month is dedicated to some disease or disorder. Each cause fighting for their...
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Birth-Day
Three years ago today I my baby boy was born. Kai should be turning 3 today. He should be starting preschool. He should be leanring and growing and celebrating his little life surrounded by family...
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This time last year
I hate that every thought I have, every event I go to, every changing of the seasons all I can think is “this time last year…I was with Kai…” And now the thought that soon I wont be able to say that...
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the last breath
This is the story of Kai’s death. I wrote it the day after he died and thought about posting it many times before today but was just not ready. Today, a year later, I want to share the last moments I...
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Next year will be different…too
http://kaisfightclub.org/2012/11/22/next-year-will-be-different/ This time last year my family gathered at Children’s Hospital for Kai’s last Thanksgiving. He was so near the end that day I could...
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Getting out of bed
The bitter cold finally settled in over Massachusetts this week. I really don’t care for the cold but the past few weeks of mild winter weather were starting to get to me. All I could think was This...
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13 months and 10 weeks -Gradutation
Today is graduation! When I first looked into going back to school, when Kai was alive, a 13 month massage therapy program seemed totally doable. I wanted to help people. I wanted to help kids like...
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Published: American Academy of Pediatrics Section on Hospice and Palliative...
Several months ago I was asked to write a short piece for the Parent column for the American Academy of Pediatrics Section on Hospice and Palliative Medicine. I jumped at the opportunity but I hadn’t...
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Couragous Parents Network
A few months after Kai died I was invited to a round table discussion for parents of terminally ill children, hosted by the Pediatric Palliative Care program we were involved with. I was not exactly...
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Medical Research and Palliative Care
Re-blogging from the Courageous Parents Network. http://courageousparentsnetwork.org/post-4-this-is-not-a-choice-we-need-to-fund-medical-research-and-palliative-care/ By Blyth and Kerri We are both...
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A chance encounter
4/14/14 Today the roommates and I took a drive to eastern mass for a workshop and found ourselves with hours to spare upon our arrival. As we followed the GPS to our destination Ashley noticed a...
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